KUCHING: A 29-year-old HIV patient has opened up about his journey with the Faedah SHAPE programme, shedding light on the challenges and triumphs of living with HIV.
Having been a recipient of the programme for two years, the individual first learned about SHAPE through the hospital and credits it with making healthcare more accessible.
“Before, it was hard for me to go to the hospital because I didn’t have transportation,” he said.
He said this to reporters when receiving a donation from Faedah SHAPE programme today.
Faedah SHAPE has provided critical support, though the assistance has primarily focused on transportation and small expenses.
The patient detailed his initial experiences of stigma and discrimination at a healthcare facility where he first received treatment.
“The staff treated me differently, especially when taking my blood—they stared at me,” he revealed.
However, after transferring to another facility, he expressed relief, saying, “It’s better. I don’t face discrimination anymore.”
Reflecting on his health journey, the patient described the symptoms that led to his diagnosis, including weakness, loss of appetite, and significant weight loss.
Since starting treatment, he has regained his health and is now working as a delivery driver.
Support from their family has been a cornerstone of HIV patients’ journey. Initially, he isolated himself out of fear of stigma.
However, after starting treatment, his family found acceptance and understanding within their household.
“At home, there’s no issue with sharing utensils anymore,” he said.
Although the patient no longer experiences discrimination at his current healthcare facility, he acknowledges the difficulties he faced during the early stages of his diagnosis.
Looking ahead, he expresses gratitude for the SHAPE programme and the ongoing support it provides.
“I feel better, and the support I receive has been helpful,” he said.
His story highlights the importance of accessible healthcare programmes and the need for continued efforts to combat stigma and discrimination faced by individuals living with HIV.
